Once researchers write up the results of clinical trials, cohort studies and registries the data is too often dormant, which the Australian Research Data Commons says is a waste of money, well, what the ARDC actually says is data sets are “inaccessible and isolated, with significant untapped latent value,” but you get the idea.
Quite a lot of money, ARDC suggests Australia spends $1bn pa on clinical trials. So, the Commons in cooperation with CSIRO, wants to encourage a “nationally supported approach to data storage, enhanced access, curation, provenance, standards, analysis, sharing and reward systems.”
There is a meeting in Canberra on March 6 to have a yarn about it all.